While I am still mostly safely ensconced away in my dark corner, the past few days have given me a few brief moments of clarity and completely normal for which I am grateful. While Tuesday pretty much bit the big one, I suppose Wednesday and even parts of Thursday were days of relatively normal news, so I will take what I can get.
Since we are still in the process of reviewing every option out there and don't have a complete diagnosis, I am following the directives of the breast surgeon. In order to even consider, um, surgery (sorry, can't say the actual word yet…I'm a wimp, it will come with time), I had to have a pre-surgical clearance. Having not re-established with a primary caregiver in the area, I went with the doctor that the surgeon's office recommended. They work hand-in-hand on many cases and paperwork transfers and such are simplified.
Really, the visit was nothing to cry over, but I used half a box of tissues anyway. The minute we sat down, a woman waltzed in, grabbed a piece of candy, and wriggled "I'm pregnant" into the conversation with the receptionist. I love happy, pregnant people. I love babies in their newborn cute wrinkly-face-ness and still can't believe that my youngest baby will be three in February (where are my smelling salts?). Somehow, though, right now, just the sight of a pregnant woman triggers a sadness in me. Not sure entirely sure of the corellation, but it's there all the same. So, cue set of tears number one….oh, heck, it lasted well into the appointment.
I was called in not long after and they began with weight and height (normal, check). Then there is the Q & A period with the inevitable question: How do you feel?
Well, DUH, I feel FINE. I'm not in pain (okay, still a teeny bit, but I am going w/residual biopsy pain). I haven't lost weight (well, a bit from not eating much, but…), sinus problems no longer plague me, I do not have so much as a darn cold. In fact, I feel healthy as a horse. The assistant looked at me, looked at the paperwork, looked back at me and clearly had trouble digesting "fine" as an answer since I was there for a pre-surgical work-up.
Then my new LEAST favorite question in the whole, wide world: What type of surgery are you having? I can't type the word, much less choke it out, so Peter has thoughtfully taken care of this one for me almost every time. I am wondering if he shouldn't just have an index card with the word written down so that I don't even have to hear it uttered aloud. Oh, sure, some day I'll throw it around like no one's business…but that's not today and I doubt anytime over the next few weeks.
The medical assistant and then doctor tested me for everything possible. Heart rate, blood pressure, blood clotting, EKG…everything is great! Yippee! I know this is good news and I do give the doctor an amazing amount of credit. She did not focus on the negative, she did not call the surgery by its name, she simply indicated that my overall health was fabulous. She then went on to indicate that should the surgery take place, she did not doubt that it would be 'easy' (as they go) and that my recovery would be as good as it could be for the scenario.
We left the doctor's office feeling as though at least something went right. I tried to ignore why we went, but by Wednesday night, I hit a crescendo and the walls came tumbling down. I knew I needed to write and get it out of my system. I know I blogged a total "woe to me" post, but it completely changed the course of my evening.
As much as the blog is completely mine, the recent turn of events affect other members of our family (quite obviously). I would not necessarily change a word of what I wrote, but have given Peter the chance to at least review before I "go public." When he returned home from taking Kelsey to choir, I pointed to the computer. He sat down, absorbed the information, turned around and said, ever so softly, "I get it now."
You see, we had been having many arguments about the surgery. As I mentioned before, it's not a vanity (well, I don't think) issue for me; it's the removal of a working body part (or two). Lest this be too much TMI and/or if this grosses you out, well, whatever. As it turns out (and it isn't something I expected to happen), Nicholas is still morning (occasionally), night and comfort nursing. It is far from his primary source of nutrition, but nevertheless, the "na-na" is still a part of his life. I am mourning not only any future loss, but a current need that was so easily filled. I am sure there will be no ill effects from a somewhat forced weaning, but it's sad to me that it won't be on our terms.
Until Peter read the last post, he didn't realize how much of my pain was attached to the usefulness of the body part vs. the overall look of my body. I can't say the latter is not affecting me…when one isn't overly blessed to begin with, the thought of losing anything is not attractive. However, he read, he digested it and things lightened up, at least for the remainder of the evening. We talked, laughed a bit and just enjoyed each other's company until Thursday rolled around.
I don't know what happened. I didn't expect to wake up and feel fantastic, but I spent most of the day feeling off. The morning was great. Coffee with friends cheered me up and I enjoyed just being. I am not sure what happened later in the afternoon, maybe long lines at the drugstore, too much traffic from the rain, or finding out at the last minute possible that not only would I have an MRI on Friday, but that would be immediately followed by a PET scan. I couldn't find anything remotely cheery about either one on-line and tried to have an immediate break-down. Luckily, something saved me: Young Teacher's Night at Nicholas's Montessori.
It was an amazing 30 minutes. From the moment we walked in the door, I was just Nicholas's mom. The entire focus was on him and his sharing of knowledge. We sat by him as he showed us how to use the mat to do his work. From puzzles to stacking, it was a grand time. In fact, 20 minutes into event, I looked up at Pete and mentioned how normal it seemed. He nodded, smiled and 5 minutes later reminded me how we couldn't forget to pick up my films from the doctor before we went to the imaging center in the morning.
Slap! Yes, that was reality hitting me once again. I shut the door on it, went back to my happy place and managed to get to the car without bursting into tears. May I just say now how much money tissue companies are going to make on me over the next few weeks? I seriously need to look into the purchase of hankies…
I had my slice of normal and all went downhill. We came home, the kids ate (I lost my appetite officially last Friday), and they were soon asleep for the night. Then came the discussions…the questions neither one of us can answer but keep asking…the arguments over the options…whether or not to attend upcoming 'support' meetings…my insistence that yesterday's testing would only bring more bad news, so why bother. It was not a night I want to remember, but probably one I should. Peter was stronger than a person should be and I finally gave up and told him it was in his hands.
If you know me, I like to be in control of everything. This entire scenario has me losing my mind because I now feel as though everything is out of my hands and nothing I want to do is truly a viable option. However, my ideas are probably not realistic or healthy and Thursday night I just gave up and gave in. After hours of dicussion and tears, I let Peter decide what we would do on Friday (okay, I didn't have the nerve to cancel) . In turn, he called and let both the imaging center and the doctor's office have it for not ensuring we knew about both appointments being back to back.
When we arrived at the hospital in the morning, he retrieved the paperwork from the doctor, answered as many questions as he could for me and guided me every step of the way. He stayed with me through the MRI and would have for the prep part of the PET scan, but for the health risk to him. He was a rock while I spent most of the morning (pre-Xanax), quivering, shaking and crying. I'll add that the bonus of 4 tries to get an IV started for the PET scan didn't help matters, but right now it is really the least of my worries.
The results? It wasn't (gulp, I hate saying this…) as bad as it could have been. A dear friend left me a note on Facebook last night with clothing tips for PET scans. I went with loose and comfortable (or what I like to call, my 'morning look' at the bus stop) and did not regret it. I even, despite my intentions to be uber-brave, utilized my doctor's prescription for Xanax. In hindsight, I am very, very glad I took that bit of advice. I do not like to medicate when not necessary, but since I slept through the MRI and the waiting portion of the PET scan and half of the scan itself, I am now a firm believer that a little bit of relaxation can be a good thing.
Five hours later after we arrived, we left the testing center with two personalized cds (um, yea?). I have yet to review them, but suppose I should bite the bullet at some point in time. Now we just need to hope and pray for a result of status quo when the results are in next week. Fingers crossed…