Exhaling in
October 18, 2010 16 Comments
relief.
If one couldn't sense from the past few blog posts, the last 12 days have been an incredible roller coaster of emotions for me. From the first day of testing, through this afternoon, it is safe to safe I have been up and down and all around. It seemed that every piece of news that came my way was cause for more worry and I ended up at the point where I simply didn't want the phone to ring. I had lost the faith that even a smidgen of good news might come my way.
Today we had to run a few errands and decided to include Kelsey since it was her early day. Peter had spent a good portion of the morning pestering doctors and support staff, making appointments and being the stalwart support person that he has become. We found this list online, and both agree that these 10 items are key for anyone helping another in this type of situation. Even in my darkest moments, each and every item seemed realistic without being hokey.
The doctor's office called as we were nearing Target and upon listening to the voicemail, figured out it was a call for a follow-up appoinment. This was interesting, as Peter had called this morning to find out when we would come in next and hadn't yet heard back. Before he could call the office back, the doctor called, asked to speak to me *shudder* and Peter handed me the phone. Ahem, support person?
Grudgingly, I took the call and the doctor asked me how I was (seriously, really?). I choked out "Fine!" and she offered that both the genetic test (for BRCA1/BRCA2) and the PET scan results were in. She then started to detail the PET scan results. As far as the liver, left breast, lymph nodes and bones were concerned I was in the clear. Nothing appeared anywhere else, but…
But?
There was one small area of concern on an ovary. From what I have learned PET scans, cycles and false positives, it is likely not a problem, but she has referred me for another ultrasound just in case. I'm thinking I should get some sort of punch card with this…have ten, get one free? I'm sure the insurance company would more than appreciate it. So, we are avoiding thinking about the ovary for now, but will have it scanned and are being positive that it will be clean.
Forget about the ovary, though, I was still stuck on the PET scan being, well, normal. I was so non-responsive, she asked again if I was okay. Still waiting for the bad news to hit, I mumbled that I was okay and waited for the other shoe to drop.
It didn't. The genetic test was in and I am NEGATIVE! Given the options I was originally given, this is the equivalent of a lottery win to me. I was looking at possibly a much larger, more invasive surgery if anything was found on the left breast and/or the genetic test was positive. Just knowing I have more options has us on cloud nine.
What does this mean? Realistically, things could change. However, for right now, the efforts will be focused on the original and only current point of concern. By no means is anything 'over' and we realize there may well be a very long road ahead of us. The bright side?
There is a bright side and for the first time in 12 days, I can see it again. I am by no means resigning myself to any particular route to wellness, but now feel as though I have some sort of options, that I am not being cornered into a do or die position. I feel as though there is hope and am so grateful to have the support of a loving husband and family and friends (old and new) who care so deeply. I realize I have been in an all-encompassing fog and I am so grateful that it has begun to lift ever so slightly…
That news is great! I’m so happy for you!!
Yippee! Good news indeed!!!
tears
Oh, wow. . . So thankful. . . I know there is STILL a lot of stuff to deal with, but. . . wow — this is definitely cause to rejoice!
Ohhh, I’m so glad to hear that! Anything you can “cross off” the list is definitely a plus. I will keep praying for wisdom and peace for you and Peter!
Such great news! Sooo happy you’re feeling better too!!!
I am so glad that this test came back with good news! WooHoo!
I assume this means it’s possible the surgery could be the L word and not the M one. Even if I’m misunderstanding, I’m glad you heard something good for a change!
Hi Jen,
SO sorry it has taken me so long to write and say we’ve been thinking of you guys. Glad to hear your above good news and hope you’re enjoying Peter’s time in town! WIll continue to hope all goes well and that more good news comes your way!
That’s definitely good news. I’m hoping it’s the first of many good reports.
Yeah! We’ll “celebrate” on Saturday!
I just heard the news Jen, and having read some of the earlier blogs I am so happy to hear of this piece of good news, God knows you deserved a break. I have to say it is amazing how even at this time your humor comes thru. in your writing! It is great that this outlet allows you to process and cope with the momentous events that you have been thru. in the last 12 days. My thoughts are with you and Pete, and of course the kids. Any contact with serious disease certainly puts a different focus on ones life, and I know you have great family and friends around you to help you through. All the best Pam
Woo-hoo!!! Glad to hear it!!!
I smiled at the idea of a punch card or frequent tester bonus. So glad to see your humor. Take care and I will continue to hold positive thoughts for you and your family.
Yaaaaaaaaay!
I am so glad that you have a bit of good news, and I am grateful that you have more options.
I think the punch card is a good idea. Is there a suggestion box somewhere that we can put that on?
Oh, thank goodness for good news! Let’s hope the good news continues to roll in as this journey continues!