Sssh!

Peter doesn't know I am on the laptop.  As far as he is concerned, my jammie-clad and uber-comfy (minus a good amount of arm pain) self is happily tackling the Sunday crossword.  However, due to my new friends, Ms. Percocet and Mr. Valium, just 5 minutes of crossword puzzle attempting can send me right into nap-land.

As Peter blogged on Friday, all is basically well.  Despite my fears from my pre-written post that published almost exactly at the time that I was being hoisted on to the OR table ("scoot over to the right…no back to the left…well, just a smidge more to the right…"), the day far exceeded my expectations.  The sentinel node biopsy prep was handled by a nurse with a calm demeanor, a quiet voice and a skilled hand.  The three shots were no more painful than bee stings and it was over before I knew it.   

IMG_0604 In fact, the morning was quite smooth from arrival to the beginning of surgery.  I was prepped nearly exactly as described, given warming blankets aplenty, a relatively painless IV and had visits with each doctor who would be working on me during the surgery.  I was also hooked up to a compression machine that would help avoid clotting issues, crucial especially given my family history.  My legs were wrapped in what looked (and felt) like soft shin guards that alternately compressed my lower legs from the time I was prepped for surgery until I was up and mobile.  Most importantly, Peter was with me until they took me down to the OR.  In fact, once I was settled on the OR table, I had but a few seconds before I was completely passed out.  No counting backwards for me on this day.

IMG_0609 Before I knew it, I was in the recovery room being regaled with the good news:  not a bit of cancer was detected in the sentinel nodes.  The surgeon did have to remove four nodes, as they were all clumped together, but they were 100% clean. The news, as one might expect, led me to burst into immediate tears of joy.  My biggest fear was a possible spread and now I was reassured that was anything but the case.  I have a feeling the OR nurses are used to this, as one simply asked if I was okay, I said, "Yes, just very happy!" and he let it go at that.

I can't honestly say that I remember much more of the day.  The surgery left me feeling as though my right side had been run over by a Mack truck and between the anesthesia and the constant stream of pain meds, I was pretty much out until the next morning.  I had a few minutes of clarity that allowed me to visit with my friends Jack and Janet, who kindly watched me so Peter could grab some dinner and a few minutes with the doctor.

It must have been a classic hospital visit:  the breast surgeon walked in, asked me how I was doing, I gave a thumbs up and then promptly yakked up the water that had just been too refreshing to pass up not five minutes before.  She took it as a good sign, though, and reminded me that since I do not take much, if any medication, on a regular basis, that the anesthesia was likely to affect me a bit more than others.

IMG_0599 I also now remember that I probably owe Jack and Janet a better visit. Not only did they thoughtfully bring Peter an eggnog latte while I was in the midst of surgery, but came back several times and just sat with us.  I wish I could have actually conversed, but my strength was pretty much limited to occasionally squeezing Janet's hand and a wan smile thrown in Jack's direction.  My hopes to sit up and have quality time with Peter later that night were dashed by my exhaustion, though I eventually managed to down a small container of gelatin and sip warm broth through a straw.  Then, despite numerous interruptions by nurses throughout the night, I still eked out several straight hours of sleep and managed to wake up by 8 a.m. and stay awake (okay, I had a few nap breaks) until later in the afternoon on Friday.

IMG_0610 By Friday afternoon I had passed all of the prerequisites for check-out (if you will) and was ready to have Peter pack my bags and head home.  My doctor had not only signed out on my departure early in the afternoon, but also approved a post-surgical massage from that point on (originally I had been told I might have to wait a week, however, she was extremely impressed with my progress).  Given that, Peter will be calling the Teal Center first thing in the morning to pencil me in for a massage/manual lymphatic drainage that should coincide with my follow-up visit to the breast surgeon later this week for a check-up and post-op pathology report review.

Where are we now?  I have been home for nearly two days and while I am not quite my old self just yet, I am sleeping long stretches at night, getting great use out of my new jammies* during the night (and day) , eating real food and enjoying visits from friends and family.  Between the Salty Dog Crew and Grandpa Kirk, the kids have been consistently occupied and have barely noticed that I am not quite back to ye olde Jen/Mom Lady just yet.

We also had an incredibly special treat last night:  Jill, an amazing lady who I am so honored to call a friend, and her husband (also deployed on a one year UT), stopped by to visit and have dinner with us.  I fear for what I must have looked like as I can't really do the make-up thing yet (oh, heck, I rarely do it anyway) and my shirts are dictated by the under-accoutrement (drains** and the like) that I must wear for the next two weeks or so, but it was an extremely fun evening regardless of me maybe still being a bit out of it.  It was a relaxing night, a distraction I needed, and though I wish I could have been a better hostess, both Peter and I were so grateful to have a much-needed quiet couples night in.

Today I haven't accomplished much other than napping, resting and using my right arm to the extent that I can without overdoing it.  Nothing other than a quiet night on the agenda, while the kids spend a bit more quality time with Grandpa and we try to stay awake for a whole movie.  All things considered, I am in such a much better state than I was this time last week…and owe a huge debt of gratitude to my friends and family for helping me find that happy place!  Please know that the comments, messages, emails, texts, cards, gifts, meals and phone calls continue to boost my spirits, as we know there still may be not so thrilling, but possibly necessary follow-up treatments.  Many, many thanks to each and every one of you!

(If you are wondering, since no jewelry is allowed (quite obviously) during surgery, the nurse suggested that Peter take care of my rings for me, rather than leave them at home.  He found the perfect way to keep them safe and close to his heart while I was in surgery.)

 

*The jammies are designed just for folks having this type of surgery.  I really, really did not want to buy the pajamas due to what they represented. However, I am so very glad I did, as they are so incredibly comfortable and useful.  More importantly, they do not look anything like what one might imagine post-surgical jammies to be.  

** I will just link to this topic here. Drains are one of the unfortunate necessities for this type of surgery.  The good news?  All appears to be going well with mine. The better news?  I have a fabulous husband who has taken care of everything in this regard and has not let me stress over it one iota.

The Morning After

Pete here again with an update for everyone. The bad news is that hospital gowns have not evolved in step with modern fashion (see pic of my beautiful wife included for proof! (but in truth she makes anything look good)). The good news (as we had all hoped) is that the cancer had not spread and the lymph nodes are clean! The axillary node dissection was not needed.

Since the cancer did not spread to the lymph nodes, it means she may not need as much treatment as originally thought (it will still be a few more weeks until the doctors review all the test results to make a final determination).

Jen slept peacefully throughout the night. I too was able to catch a few winks. However, most of the time I just sat there and stared at this amazing woman in front of me. As I did, instead of thinking about what she has endured over the past month, I thought about all the joys we will experience together in the future!

The Morning After

The Woman I Love

As you have probably surmised from the title of this post, this is Pete making a rare blog authoring appearance to give a quick update on the woman I love. I have spoken to Jen’s doctors and they tell me her surgery went well. She is out of recovery and we are in her room. More details will follow in time, but right now I have to take care of my baby.

If you are reading this

Warning:  This post is not for the faint of heart. If you tend to be squeamish, you may want to stop reading now.  I should also note that this is what we expect will happen.  In all likelihood, I will post an update if things were radically different (and hopefully better)!

at the exact time it was published, then the journey towards my 'new life' is likely beginning. I have been at the hospital since 7:30 a.m. in order to take care of paperwork and other fun pre-op chores.  While I may not be under anesthesia yet, let's hope to God the Xanax I took at midnight last night and the follow-up dose I took at 6:30 a.m. did the trick of relaxing me.

Once the paperwork was finished, I was led to a room where I could change into my surgical 'gear'.  I am wearing a hospital gown that opens in the front (*shudder*) and one over that one that opens in the back in order to keep me warm until surgery begins.  Thoughtful, eh?  Supposedly, I will have warming packs, too, but those will not be added until the pre-surgical procedure is over.

You see, as part of this nightmare, I am going to be forced to undergo a sentinel node biopsy.  I tried to opt out (lymph nodes are there for a reason), but was told "no" in no uncertain terms (so much for options).  Yes, I am one of those crazy people who prefers their body to be more intact* rather than less.  Apparently, the surgeon disagrees.  A huge point of contention, but I am going through with this anyway and woe will be to the surgeon** if I end up with lymphedema.  

After I am in my surgical get-up, I will have been sent to radiology so they can inject me not once, not twice, but three times in my breast with radioactive dye.  Fun!  Not only that, what is the follow-up? I will have had to rub my nipple in order to get the dye "flowing" to properly work during the surgery.

Guess what, Jen?  Not only are you having your entire boob removed, but, to add insult to injury, we are going to force you to rub in the radioactive dye in the area that you will lose within hours and never feel again….ever.    Yes, you can bet they will be getting feedback on how to make this procedure less emotionally painful.

Following that debacle, we will have gone back up to the pre-surgical area, where the I.V. for anesthesia will have been started.  I'll have been on the gurney nervously awaiting transport praying that the anesthesia kicks in quickly once we arrive in the O.R. …the faster I am asleep, the better as far as I am concerned.  Then a few minutes before 10:30 a.m., they will have retrieved me.  I'll give Peter one last kiss and hold onto his hand as long as possible, until they pushed me through a set of doors that breaks our clasp.

Then?  Supposedly three hours (or so) from now, I will be wheeled into recovery and I will be on my way to healing.  I am too frightened to think about what I will look or feel like.  I guess only time will tell as to whether I will be remotely pleased or upset beyond words by the results.  It's all for the best, though…right?

*I am sure there are many who will think I am off my rocker and I accept that…but A. it's my body…and B.  damage done now will affect me for the rest of my life…and quality of life is a huge issue for me.

**It's probably quite obvious that I am not thrilled with the bed-side manner of my surgeon.    While researching a separate topic, I stumbled upon this article.  I was thrilled to find someone in the medical field who not only noticed the pain, but actually attempted to understand the loss incurred…for both the woman and her spouse/partner (and then shared with the world). 

In an attempt

IMG_0550 to distract myself from my life, I ran away last weekend.  I packed my bags, grabbed Peter and we high-tailed it to Bucks County, PA.  Long before these messy health issues were upon us, we had been invited to my cousin's wedding and we realized it would be the perfect time for a weekend special at the Sheraton.

We had originally planned to do the uber-romantic B&B thing, however we ran up against two issues: they are pricey and they don't always have what you want.  If I am back-packing across Europe, I don't mind having to share a hall-bath.  However, a romantic weekend getaway that is running us $200/night?  We darn well better have a clawfoot tub/Jacuzzi and most definitely a private bath.

 Even when we thought we would have a bit extra from Peter's time in B'dad (those days are LONG gone), the thought of spending that much on a weekend away made us a bit ill.  Then my cousin mentioned that there was a post-wedding brunch at the hotel on Sunday, and we realized we could suck it up and consider the Sheraton our place of choice for a whopping $99/night (pre-paying Friday morning saved us $105 alone!).

It wasn't until our arrival at the hotel that we realized that our last stay there had been the evening of May 17, 1997 (ahem, think wedding bells for us…).  So, while it may not be the B&B we hoped for, certainly brought back many good memories (minds out of the gutter, I was remembering our moms singing a duet of "I Will Survive" during a Karoake session at the post-reception party).  Oh, I must find those pictures!

We checked in and had but a few minutes to scoot to the rehearsal dinner.  My aunt (technically my cousin, but I don't feel up to semantics) had invited us to nearly every event possible.  The dinner was held in West Trenton and upon arrival, we realized we didn't really know that many folks, nor did we have a clue where to sit.  We did the small talk thing, sipped a nice pinot and then we were motioned to sit…but where?

All of the available seats were taken, save for two at the table with the bride's parents and their best friends. Rather sheepishly we took our places and felt like complete intruders…until they learned about Peter's job and our travels.  Instantly it opened up the conversation for the men.  However, I was a bit, well, shy and unsure of how to fit in.  Then fate took a hand.  

I admit, I spent a good portion of the night texting with our 'sitter'.  We had never left Nicholas for an entire weekend before and while I assumed he would be fine, I didn't want to jinx myself.  Just as I was putting my iPhone back in my purse for the 100th time, I felt a pair of eyes on me.  I looked up (having hoped all of my texting had gone unnoticed) and there was the mother of the bride, with just the tiniest gleam in her eye.

"You have an iPhone?" she asked.

"Um, well, yes, just texting home to check on the Little Guy!" Huge gulp and quickly imagining being kicked out of fabulous dinner.  Busted!

"Don't you," and she paused to look around, "Don't you just LOVE it?"

Huh?

She then looked down at me, gave me a big grin and stated (oh so proudly),"I got an iPad for Christmas…I don't know what I ever did without it!"

Commence at least 30 minute conversation on iEverything.  The rest of the evening flew by, and the next thing we knew, it was Saturday afternoon and we were off to the first wedding we had attended in years.  Even when we have been state-side, our schedules/circumstances haven't always allowed for us to be able to participate in family events.  To actually be present at a wedding and catch up with family we haven't seen in years was an enormous treat. 

The reception lasted well into the night and the reports from the homefront said that all was going well.  We ended the weekend with a post-wedding brunch on Sunday morning and headed home after making a brief, but necessary stop at the cemetary.

IMG_5276 Normally not a topic one would associate with the emotion 'happy', but we had stopped to ensure our satisfaction with my mom's gravestone.  We have been waiting years (quite literally) and it wasn't until last fall that it was finally completed.  Despite my fears, it was not the upsetting trip I thought it might be.  We found the grave, marked it on Peter's GPS (if you know my mom, she would love that…), and added a small Christmasy decoration.  I really wasn't sure what to do, as it still seems wrong to be doing any of this so soon…she was just so young.  I got through it though, and realized that I was fine.  No tears, it just is what it is, even if seemingly years too soon.

Then we went home.  We had a dinner to attend that night in Annandale, so we picked up a quick lunch (Jules, how we have missed you!) and headed back to 95.  We didn't have a chance to do everything we originally planned (no romatic stroll along the canal), but Peter wisely figured those items left undone could easily be added our list for the next trip.  Still, we had more than 48 hours just to ourselves and they were absolutely priceless, especially considering the timing.  The next few weeks to months will likely be less than stellar and I will need all of the happy weekend memories as motivation to slug through it all.  Pete swears that island vacation is not on the back burner, as I feared…guess we shall see?

Um, yeah, kind of forgot to have anyone take a good pic of us and not sure when the official family wedding photos will be ready.  As an FYI, that is not a giant pimple on my face in the first photo, it's a dimple…I swear!  

 

 

 

Is it wrong

to be extremely cranky and jealous right now?  I am supposed to be on a high from a weekend away (thank you, Salty Dogs, for taking such fabulous care of our crew!) which was really awesome, BUT

posts are being assigned.  Handshakes are being given and so many people are finally hearing the good/great/fabulous news about upcoming assignments except…yep, except us.  Thanks to my less than stellar health, our bidding is still completely on hold and may in fact, be over for this year.  I thought I was getting over it, and then realized this morning that I still can't shake my utter disappointment in myself.

We worked SO bloody hard for this and everything has completely fallen apart with regard to next year's post.  People say things happen for a reason.  Reason, if you are out there and listening, please get in touch ASAP.  I really, really need to know why me, why now…and I'll take almost anything for an answer.

(And, yes, there WILL be a Jen & Pete had a very happy weekend in "Pencil"vania* post..it just may be a bit delayed)

*About an hour after we left, Nick asked where we were going.  Shannon replied, "Pennsylvania."  A bit later, Nick asked if we had any pencils.  I do so love the literal thinking of a toddler…

 

Who knew

Power strips were required for romantic getaways? Ah, one of the many joys of being married to a techno-gadget geek…and, no, I wouldn’t change him for the world…

Who knew

{this moment}

{this moment} – A Friday ritual. A single photo – no words – capturing a moment from the week. A simple, special, extraordinary moment. A moment I want to pause, savor and remember. If you're inspired to do the same, leave a link to your 'moment' in the comments for all to find and see. 

 

IMG_0543

*** *** *** 

Idea courtesy of Soulemama

Grateful

IMG_0548 For the friends who are giving us a last weekend away before the 'D day' on Thursday, watching our children on 'D Day' and giving us a follow-up weekend to recover.  For Grandpa, who will travel several hundred miles to spend several days (and nights) with the kids, so we will not have to stress about anything after two days in the hospital.

IMG_0549 We are thankful for the long-time friends and those we have only just met who have dropped off dinners and for those who have offered meals over the next two months.  We are appreciative beyond words of the person who has taken it upon herself to organize this site for us.  She has worked diligently to ensure that our needs are met and we are so grateful for all she has done.  We are touched by those who bring drop by hand-made gifts 'just because' and by those who know when a box of chocolates is just what the doctor ordered.

Then the cards, comments, emails, and phone calls have continued and also work to bouy our spirits. We are thrilled to be part of such an amazing community and while it is nowhere near adequate thanks, please know that we are so appreciative of each and every person out there who has been so kind to us. We only hope that someday, somehow we can return the favor… and maybe throw a giant party when all is said and done?

 

I spy

While all three kids were home from school on Monday, yesterday was a day off only for Caitlin and Kelsey.  Prior to this entire "BC" mess, I had planned on taking the girls into the city to visit the Spy Museum on this particular Tuesday.  I had long been intrigued by the concept, but had been forewarned by others that LG may not yet appreciate all it has to offer.  Since it turned out that we still had a relatively free day, we went ahead with our plans (shockingly normal!).

IMG_0544 Caitlin surprised all of us by actually hauling her tired self out of bed by 9:30 a.m. (it's hard reading until 3 a.m. and then being expected to get out of bed before noon on a day off!).   Peter purchased tickets for the 11 a.m. tour and we drove into the city (which breaks my green, eco-concious heart, but since it would cost us 3x as much to take the Metro as it would to drive….).  We parked, walked the whopping two blocks to the museum and took the one and only picture we could.  For whatever bizarre reason, one cannot take photos inside the museum.

I thought momentarily I was some sort of criminal type as it seemed like my iPhone had 'accidentally' snapped a photo while I was in the "choose your disguise" room.  Sadly, it was not the case (and the photo would have only been of the floor).  The verdict?  

The kids liked it, Peter liked it, and I thought it was interesting.  I probably would had more fun, but I knew in the back of my mind it was just a distraction.  I did enjoy actually being able to peruse the museum at my own pace, as that has not happened in ages.  While I love Little Guy dearly, I absorb next to nothing when we take him to a museum.  Ever tried following a whirling dervish through the Museum of Natural History or any other museum, for that matter?

After absorbing oodles of information on every spy and double agent out there, being cajoled to purchase half of the gift shop, and watching a theft nearly take place in said gift shop, it was time to leave.  What is it about kids and gift shops…why do they always want what they already have?  We have a perfectly good set of real handcuffs at home, but NOOOO, gotta have the cheap souvenir junk. 

I thought the perfect way to cap the day in the city would be a tasty lunch downtown.  The only problem? I have not been to that part of DC in ages (yes, I am embarassed to admit that) and had no clue what was around.  I Yelped nearby restaurants and found a Latin American themed restaurant that seemed to fit the bill.  It was a bit pricey, but had crab-filled arepa on the menu as well as other tasty treats.

It was a total disaster. Not only had they just changed the menu, so the "seasonal" arepa dish was now a duck confit, but the kids' burgers came out covered in stuff they didn't order and raw as could be.  The guacamole was quite good (and ended up being free), but it just wasn't what we had desired.  Between the lack of arepas (they are NOT seasonal!), the messy burgers and me suddenly remembering what I was trying to forget, it was a lousy lunch.  I had to work to finish the tiniest salad on the planet and then escaped for a few minutes by myself while Peter dealt with a cranky Kelsey (well, they did royally screw up the order) and Cait, who must antagonize her  ("My burger is SOOO yummy!").

Part of the problem is that I had too much time to think during the morning.  I had plenty of time to reflect on last week and decided to dwell on the visit with the radiation oncologist that was less than stellar.  It probably would not have been so problematic, but the appointment was Thursday afternoon.  We found out Thursday morning that it would almost immediately followed by that ultrasound of my right ovary that I had been delaying.  Well, not delaying, but I simply had not scheduled it, as by the end of the week before last, I simply couldn't take any more bad news.

I figured I would get to the ultrasound eventually and since most everyone seemed convinced that the ovary issue was a naturally occuring blip, it wasn't urgent (in my mind).  The oncologist decided at my visit on Wednesday that it would behoove everyone to simply nip it in the bud and have the scan completed ASAP.  As luck would have it, there was an opening an hour after my visit with the radiation oncologist was over.  Thrilling, no?

To say I was not happy about meeting with the radiation guy was an understatement.  It was my 5th appointment of the week, and I was completely over meeting with people.  He noticed that I was not thrilled and thought it would be fun to play Dr. "I'm not going to sugarcoat" anything.  I was SO not in the mood and when I finally snapped at him that "I DO have options" he paused, admitted I was right and made his tone a little less threatening.  In reality, of all the things that may happen, I am probably the least stressed about the possibility of radiation treatments.  However, he caught me on the heels of an hour of Googling "treatments for ovarian cancer" and my mood was in the toilet. 

Fortunately, as with the chemo, radiation is not even on the table yet.  It won't be an issue unless they find "x" number of affected lymph nodes during the surgical procedure.  Supposedly, x=3, but I am sure if this guy has his way, x will = .01% of one node.  We went on our merry way after he softened his tone and realized that it was pointless to go much further since we did not have a complete diagnosis.

We still had an hour to kill prior to the ultra-sound, but we managed to fill that with lots of 'what-ifs' about both radiation and the possible results of the u/s.  Finally, we were called back and I got to have not only an abdominal ultrasound, but also a…you know what, I'll spare you the misery.  After 20 agonizing minutes and little or no talking on the part of the tech, she left for a consultation with the radiologist.  Another incredibly long and painful five minutes passed and she finally came back.

"The radiologist reviewed the ultra-sound and we can tell you that it's…

completely normal."

Not the response I expected given the somewhat grim look on her face, but our exhalations could likely be heard in California.  We practically skipped out of the office, and hurried home so Caitlin could make it to her voice class.  The best part?  The ultrasound not only capped off the week of appointments, but was also the final doctor's visit prior to "D-Day" next week.  I can't say that I am looking forward to November 11 at, gulp, 10:30 a.m., but at least we have a few normal days before then…